Olivia had another good day today and we put her first baby grow on, the stub of her umbilical cord dropped off and we had a visit from Lisa's mum and my dad and his wife. The baby grow isn't allowed to cover her legs as she has a long line that gos in to her leg just above her ankle that delivers her fluids.
After such fast progress these last few days have been so frustrating, she is settled and seems happy but because her aspirate levels are still up one day down the next she is still nill by mouth. The surgeons notes from the round this morning were very to the point but didn't really do much to inspire us...- "High aspirates-Plan of action- Nill by mouth." She produced 84mls in total yesterday which was her highest for a good five days, they were low whilst we were there today but might well be back up again by the morning.
The days feel like they are beginning to merge together now which is not a good sign, when you are sitting in the ward there is very little stimulation apart from the beeping of the machines and the odd cry from a baby. There are no outside windows in the room where we are so it becomes hard to keep track of time without checking your phone every so often (no watches allowed) and cabin fever is starting to set in. I'm sure when the feeds start and Olivia starts to spend more time awake everything will change.
New week tomorrow and we have everything crossed for her first feed so we can start to think about a few weeks time when she will be home. It's not like a broken bone where you have a date when everything should be back to normal by, there are lots of what ifs and maybes with gastroschisis.
Night all .
James xx
No comments:
Post a Comment